At Alzheimer Calgary, we understand that language shapes perception and experience. How we talk about dementia directly impacts the lives and dignity of those living with the condition and their care partners.
We're pleased to share this summary of valuable guidance from our colleagues at Alzheimer Australia on using respectful, person-first language when discussing dementia. Their Dementia Language Guidelines provide an excellent framework that aligns with our own commitment to dignity and respect for all those affected by dementia.
The language we use when discussing dementia matters significantly. Our word choices can either uphold the dignity of individuals living with dementia or inadvertently contribute to stigma and discrimination. As advocates for compassionate care, it's essential we consider how our terminology affects those directly impacted by dementia.
People First, Diagnosis Second
According to Alzheimer Australia's Dementia Language Guidelines, people with dementia are individuals first, and their diagnosis should never be regarded as the defining aspect of their lives. This simple yet profound principle should guide all our communications.
When referring to someone with dementia, the following person-first phrases are recommended:
- A person/people with dementia
- A person/people living with dementia
- A person/people with a diagnosis of dementia
These phrases acknowledge the individual's humanity before their medical condition, preserving their identity beyond their diagnosis.
Terms to Avoid
Alzheimer Australia identifies numerous terms that should be eliminated from our vocabulary when discussing dementia. Many of these words and phrases are demeaning, derogatory, or place the condition before the person.
Terms to avoid include:
- Sufferer or victim
- Demented person
- Dementing illness
- Dements or afflicted
- Patient (when used outside medical contexts)
- Empty shell
- "Not all there"
- "Losing him/her" or "someone who has lost their mind"
- "Fading away" or "disappearing"
- Senile
- Crazy
Also problematic are colloquial expressions like "delightfully dotty," "away with the fairies," or "a couple of cents short," which trivialize the condition and diminish the person's dignity.
Let’s Keep the Conversation Respectful—and Supportive
The words we choose matter. By using respectful, person-first language, we help create a more inclusive and compassionate community for those living with dementia and their care partners.
If you're supporting someone with dementia or navigating the experience yourself, know that you don’t have to do it alone. Our Support Navigators are here to listen, guide, and walk with you—wherever you are in your journey - free of charge.
Talk to someone at Alzheimer Calgary today.
You can also find inspiration and practical tips through the StillMe social movement for change here. Join us and help shift the perception of what living with dementia really means.